Well Jason seems to be getting a bit better. Today he was a lot better than yesterday. We still have a bit of coughing and gagging and lots of poos but a lot better. I am hoping that he is on the mend.
Drinking is getting there. Yesterday he had 1100 orally (920mls paediasure and 180mls water) and today he has had 1330mls orally (1130mls paediasure and 200mls water). Tonight we are down to 200mls via the pump.
This morning when I changed Jason I noticed his mic-key (feeding tube in his tummy) was pretty loose. When I checked the water in the balloon there was about half a ml left (normally 5mls to keep it in the tummy). THANK GOODNESS it didn't come out during the night when we were all sleeping otherwise we would have woken up to a sealed tummy and no tube. Who knows what we would have done if that happened? I guess if the hole was closed, the hole was closed and we would have no choice but to progress with the oral drinking and feeding. We are almost there anyway. But I am glad we were not forced into anything and I managed to change the tube fine without any closed hole dramas. Another expense of having to buy a spare replacement though!! Grr.
I am still finding it difficult that I am still Jason's "feeder" and that he won't feed himself. It is very tiring having a child rely on you 24/7 with their eating and drinking where they won't attempt to eat and drink for themselves. It is tiring and a lot of you tube fed moms and dads will agree with me. We spend our days and nights feeding our children for them to grow. Although Jason is taking orally (which I am ecstatic about) he still relies on me for his feeding. I am giving him his paediasure with the syringe every 2 and a half to 3 hours during the day with water in between. So it's a long day for us. It is better than tube feeding, that's for sure and I am by no means moaning and ungrateful for Jason "drinking" orally but I do wish he would take to the cup again. I guess it is hard considering I know that he can drink with the cup - he was beautifully at one stage and then came down with a tummy bug and that was the end of the cup. Also tasting foods has gone out the window with him not feeling lekka. And now with this "illness" as well. So we have taken a bit of a knock and gone a bit backwards but I am sure we will get there again. I really hope so. Anyway baby (Jason's little sister) will be born next month and maybe by him seeing that the baby drinks on her own he will also want to be more independant and do things for himself. Who knows??
The great thing is he is taking all his milk orally during the day and whether it is with a syringe or not, it's orally and we are not relying on the tube. Not long now and we will have no night feeds - 4 nights to be exact!!
His weight was down this morning from 14.8kgs yesterday to 14.6kgs today. Strange how it fluctuates like it does but he has been pooing lots. Hopefully he will be able to find a weight and maintain it with his day time drinking.
We have polygam on Wednesday and if he is not well by then at least he will see the paed to be examined and blood tests will be taken to see if he has anything.