Jase had a lovely session of gross motor play paired with imaginative play. I guided and encouraged him to pretend that two items of equipment were animals and he was able to name them. Afterwards, we drew a picture of Ben the Bunny (from the game) on a whiteboard together.
Occupational therapy 26 April 2018
Jase had a lovely session of gross motor play paired with imaginative play. I guided and encouraged him to pretend that two items of equipment were animals and he was able to name them. Afterwards, we drew a picture of Ben the Bunny (from the game) on a whiteboard together.
0 Comments
So today we returned to the dentist for Jason's first of 4 fillings. The dentist took photos of the 4 teeth that need attending to - some big holes in those 😲. Not good condition but I keep reminding myself that it's not our fault. Jason had such oral tactile defensiveness that he wouldn't allow anything near his mouth for years including teeth brushing!!
Anyway that corner has been turned. He sat for half an hour with a gum guard opening his mouth, a dentist with a mirror and a drill, a dental assistant with a suction device and 3 faces staring at him. His gum was numbed then injected with a big needle then his tooth was drilled then filled then dried with another device all while Jase and I gave each other thumbs up throughout the procedure 😁. Braver than me my boy!! He made mommy so proud!! One done 3 more to go!!!
We watched this story with great interest. Aaron's folks have done the genetic testing that we would like to have done for Jason to properly diagnose his immune deficiency. I have met Monica Esser the immunologist at a conference but she is in Cape Town and a trip to her means air tickets and consult fees. We would like to do the genetic testing. I believe the cost for the genetic test is approximately R17,000.00 according to Jason's doctors but his paed feels that this will definitely benefit Jason to have him diagnosed which will direct his doctors in the right direction with symptoms and treatment.
Aaron's case is obviously more severe than Jason and they don't know whether the inability to tolerate food is related to the type of immune deficiency he has. This highlights the importance of registering as a bone marrow donor. Bless this little boy and his family ❤.
https://carteblanche.dstv.com/boy-cant-eat/
If you would like to assist us with having the genetic testing done this will help Jason hugely. We do have his trust bank account still open. The funds are low although we have about 4 people that donate monthly towards Jason's medical bills and treatment.
The trust banking details for donations and support are :- EFT deposits :- The Jason Long Trust Investec current account Account number : 50012036474 Branch code : 580105 Reference : Your name Cash or cheque deposits :- ABSA Bank Investec Corporate Cash Manager Account number : 4059749310 Reference : 50012036474 Please add depositors details Paypal : [email protected] If you would like to make a donation, please click on the link below. Octagam time again. Jason with Gordon his PINSA (Primary Immunodeficiency Network of South Africa) Giraffe.
Shu we've come a long way!! Love seeing our Facebook memories! 8 years ago before we went to Austria.
A huge milestone for our little man. First visit to the dentist 😁. For a child with sensory issues especially oral issues this was HUGE. Jason was actually excited to go. The dentist gave his teeth a good clean and an xray. We need to go for approximately 4 more visits to do 4 fillings. What a champ he was 😊. Proud mommy moment.
Onion and ice still the favourites but today ate half a chocolate doughnut for the first time 😁. Granny Berit Long also got him eating chocolate over the Easter weekend 😊. |
Categoriesee
All
Categories
All
Archives
April 2019
|