I wanted to update today but ran out of time. What I have done is copied and pasted my facebook posts for the past two months. We had two hospital admissions in July for illnesses and have had two polygam admissions as well. It feels like we are forever in hospital.
Jason is doing a lot better now. We just need to get some weight gain but with his malabsorption issues we are battling with whatever feeds he gets.
I have recently been in touch with a pediatric gastroenterologist that is recently come to town. We have never had one in our area. I am looking forward to meeting her and seeing if she can help with Jason's complex case. I have forwarded her a lot of our historic documents for her to do some reading in the meantime and hopefully we will see her in the next week or two.