His nose and chest is giving us a bit of a problem at the moment. His nose is very congested and he is battling to breathe. Dr. P has added Acc 200 and singulair sprinkles to help. Shame his mouth is very dry and always open because he can't breathe through his nose. I am giving him water regularly and spraying his nose often to try and clear it. This is taking quite a while to clear and we have been nebbing for a few days now. Hopefully tomorrow with the added meds it will be a lot better.
Feeds via the vein are still going fine, nothing new to report there. He is still having a lot of poos even without food in his tummy which is crazy but while we are here at least all these things can be recorded and checked out. Not like me having to go home with the problem. This time I am adamant that the doc and the dietician are involved when we start introducing food again. They need to see what is going on instead of leaving me to it and only returning when he is dehydrated. Time will tell I guess.
Otherwise not too much news to report, Bruce and I swapped places today, he spent the day with Jason and I spent the day with Nicole. I managed to have a little afternoon sleep while she slept and have a decent shower instead of a splash in the bath worrying that one of the other parents are going to walk in on you because there is no lock on the door.
Jason seems to have a bit of separation anxiety now. I think this is because of me leaving him alone in the hospital when I went to the fund-raiser. If leave his sight now he starts shouting "mommy where are you". Yesterday when I left him sleeping and ducked out to the shops when I got back he was awake and very upset shouting "mommy, mommy, mommy". I guess we are always together now day and night as well but I hope he gets over this because he has never had this before.
I am doing fine, I seem to do better when I am at the hospital with Jason. When I am not with him my mind starts to race and worry about him and think too much about things. I guess being IN the situation you don't get time to think about things and worry but if you are out of the situation it's another story.