Hi guys most of you know about Jason's illnesses and conditions that he has. Jason has Mitochondrial Disease, he also has combined variable immunodeficiency, cyclic vomiting syndrome, chronic kidney disease, chronic diarrhea and requires an operation for a urology procedure. Jason also has a feeding tube as he is unable to eat solid foods yet and relies on nutritional supplementation.
All these diseases, illnesses, therapy costs and medication are very costly. Jason goes to a special needs school where school fees are R5,000.00 per month, his medication costs approximately R3,000.00 per month (which is currently being covered by medical aid but funds are running low), his speech therapy is R330,00 for 45 minutes (R1,320.00 per month), pediasure costs approximately R1,400.00, nappies R560.00, syringes R317,12 = R11,597.12 per month (excluding night feeds which I hope we can continue to do without). We were receiving help from our local government hospital with Jason's formula and pump sets but unfortunately government cannot provide us with pediasure anymore and the replacement formula is not agreeing with Jason so we have basically lost that financial assistance as well.
A friend of mine has kindly come forth and offered a prize and come up with the idea of a raffle to raise funds to assist us financially. There is about R1,000.00 left in Jason's Trust Fund. The proceeds from the raffle and any donations will be paid into the trust account and will be used for the above monthly expenses. The trust is all above board, legally registered and administered through attorneys.
We cannot afford Jason's monthly expenses on our own and really need help from the public. Please assist us with this fundraiser by buying tickets, selling tickets and spreading the word. If you would like to buy a ticket, the banking details and email address is on the attachment. If you could help with selling tickets please also contact me and I can email the raffle tickets to you for you to sell. If you could assist in any way by adding prizes to the raffle to make it even more attractive, please let me know as well. We all know lots of people and if you are able to help this will really help our family. I don't have the time or energy at the moment for a Barnyard Fundraiser. This raffle is a start and could really help us get through the months. Tickets are R50.00 each. I know there is only one prize at the moment but the idea is to pay it forward and help a family. The prize can only be given to South African's obviously but overseas people are still welcome to donate and spread the word if they have South African friends that would like to buy tickets.
If you do not wish to buy a ticket, a donation would be just as nice. The banking details are :-
First National Bank
Account name : Jason Long
Account number : 62232118473
Branch : Ballito
Branch code : 250102
Reference : name and donation
We also have a PayPal account : [email protected]
Jason's facebook group is called Jason's journey to eat again. My email address is [email protected].
If you would like me to email you the attached flyers and details, please leave your email address in the comment or email me.
Please share this website address to help spread the word.