The diarrhea - I was about to report that it was
non-existent today but he has just done a massive one and we have had to change the bedding again. It always seems to be night duty that this happens. The night nurses are starting to get a complex. Today during the day he was absolutely fine. We have increased the rate of the feeds from 40mls per hour to 50mls per hour but surely that wouldn’t make such a big difference. We are still giving
the buscopan for the stomach cramps and pains. His stomach is still making a lot of noises and bubbly. His bum has healed nicely from the terrible rash he had.
The drip infiltrated again today unfortunately. This is the 5th time we have changed drips in the 6 days we have been here but that’s what happens when you have a drip in both arms/hands and such fragile little veins. Luckily Jason is so good with having his drips done – poor sausage.
We had polygam last night so that should help him with his immune system fighting the infections. Jason had a good night sleep. Mommy didn’t sleep much at all. With polygam you always get bubbles in the line and the machine beeps when there are air bubbles so I was up quite a bit with that. My slow leak in my air bed turned into a fast leak so I often ended up on the cold hard floor. I was up pumping quite often. I guess those chocolates from my work didn’t help with that. Thanks guys!!! Bruce has come to the rescue and brought me a new bed. What a husband!!
Speaking of chocolates our boy ate a chocolate today!!! I handed him one and he sat there merrily chewing on it. Unfortunately silly me chose the toffee one and the toffee got a bit stuck on the roof of his mouth and teeth and he didn’t like that which caused him to gag a little. BUT he ate something and that in itself is a miracle :-) He also drank a lot of water with his sippy cup today.
Anyway our little man is on the mend. Every day we see improvements, every day he is getting stronger. We have been here in hospital for a while but at least Jason is getting the medical treatment he needs and the paed and dietician can monitor him and see exactly what is going on. When we start feeds at least we can monitor the changes.
I do believe we will see a change in Jason, I do believe one day we will have a miracle and Jason will be healed and start eating. My faith is very strong and I believe God is in every situation. We may not think he is and we may question “why me”, “why do I have to go through this”. Well it’s not up to us to question God’s plan for us. The devil is there to destroy but God knows us, our spouses and partners, our children, our parents and our siblings from the top of our heads to the tips of our toes. He had plans for us before we were even born. Some of us go through suffering through illness, financial difficulties, marital or relationship problems. Life is tough we don’t know what lies ahead tomorrow. Tomorrow could be a really good day or tomorrow could be a really terrible day in whatever you are going through. BUT have faith, trust and never lose hope that God is with you in every situation. I have a lot of questions and concerns for the future for Jason and where we are going with things but I do believe and I do have faith that God will guide us in the right direction. He will open doors that need opening and he will close doors that need closing. He will direct us to the right doctors, to the right school, to the right therapists and specialists otherwise he will perform a total miracle. Miracles do happen and I will continue to keep the faith no matter what happens.