The urine result came through this afternoon. The protein in his urine has decreased a little from 2.48 to 2.18. Not as much as we were hoping but hey it has come down at least. I spoke to Dr. P about this and what we will do if it doesn't go down. He said there are ways to improve but for the life of me I cannot remember what he said. I will discuss this with Prof B.
We haven't been able to collect any saliva for the immune test. Jason doesn't produce much saliva at all and he doesn't know how to spit despite me giving him spitting lessons :-). The doctors want me to collect a stool sample to test his amylase levels. This is for the purpose of his malabsorption issues to see if there are any problems there. Jason normally has persistent chronic diarrhea at home but the last few days he has been battling. Not constipated I would say but just battling. I gave him a sachet of pegical this morning to help and I am still waiting for the nappy to send away to be tested. Now that I want it he won't do it.
Ouma came to visit today and spoilt us all. She brought me a lovely home cooked meal which I had for supper tonight. Was very yummy. Only an Afrikaner can make frikkadels like that. Thanks ouma was lovely seeing you and thank you for the beautiful photos. We love you to bits and you and your family are very close to our hearts.
I am missing Bruce and Nicole very much. It isn't easy being away from your husband and 19 month old little girl for so long. A day is a long time but a week is torture. Bruce is doing a great job at being mommy and daddy and is learning the art of multi tasking. I must say he is brilliant with her and she only has eyes for daddy. I am good but daddy is her favorite. Tomorrow she has her first school photos so dad will be up very early making sure he packs the right clothes for her first professional photo shoot.
This afternoon we watched the most beautiful sunset from our hospital room. The most beautiful sky with a storm threatening in the distance. I often look outside our hospital room and look at the sky. When I look at a sunset like that I just know that God is watching over our family and Jason. He has always been there looking after Jason from the moment he was born at 1kg. A tiny little perfect baby that has had so many difficulties and challenges in his life that not every child goes through. Yet despite all his challenges Jason is always there with a beautiful smile on his face. God provided us with the most gorgeous perfect son. It isn't easy having a special needs child (a lot of you reading this know) but God always gives us as parents the strength to get through the challenges with them. It isn't easy watching your child go through sicknesses, operations, MRI's, EEG's, prodding and poking for drips and even just trying to feed them BUT God always gives us the strength and the courage to face each and every challenge that comes our way. They say God doesn't give us more than we can handle but goodness some of us he REALLY trusted!!