The diarrhea has always been with us. We have never had a solid poo and this is the reason why we have not been able to potty train as yet. This is something that will come with eating I am guessing. Being on a formula or pureed foods you aren't going to get normal stools. BUT with Jason he often has watery poos. The antibiotics doesn't help either. Even immodium isn't helping.
The nurses found it quite funny that I was packing the car even before we were discharged. I told them that they would be helping me unpack if we weren't discharged.
Well Dr. P was happy to discharge us as there was no need to stay any longer. The diarrhea is something that is going to have to improve with time and isn't something that is going to happen any time soon. Prof B was hoping to see us before being discharged but we will make an appointment to see him once the urology procedure is behind us. After the procedure and once Jason is free of all the medication we can investigate the kidney problem.
I heard from medical aid today and they again have declined our request for them to pay for pump sets, bags and feeds. They have advised me to apply through ex-gratia which is another long process and more forms and quotes and letters. I think it is shocking how medical aid will decline our PMB request when Jason has a FEW conditions on their list. It' terrible how they will sit down and discuss our case WITHOUT looking at our situation, taking the time out to even come and meet Jason. They have approved 4 weeks of speech and 4 weeks of occupational therapy. We have been doing speech and OT for 2 and a half years now and they will pay for 4 weeks!! Oh well I am not going to give up. I will apply through ex-gratia. They are welcome to have a look at our monthly income compared to our monthly expenses and then tell us still that they cannot help. What I don't get is if they actually helped pay for Jason's nutritional requirements especially pump sets and bags they would save themselves and us money by avoiding hospital admissions in the first place. They are happy to pay for hospital admissions yet they will not pay to avoid admissions. It's crazy and there are a lot of South African families in the same position trying to feed their children with feeding tubes and medical aid don't see this as a life threatening condition. Our children don't eat, they have a feeding tube and if we don't feed them the right formulas they fail to gain weight, they lose weight, they get sick!! Jason is malnourished, failure to thrive even with a feeding tube and expensive formulas yet medical aid don't help. We are on our own.
Anyhow it's great to be home with my baby girl and Bruce. On the way home I was watching Jason in my mirror and goodness it was lovely to see him smiling, his face was actually glowing. He knew we were going home. What a nice feeling for me and for him. Seeing him so happy brought tears to my eyes reflecting what he had been through and looking forward to being home. The first thing that Jason did when we walked in was run up to his baby sister and love her and the two of them played so nicely, the both of them giggling together. It was wonderful to see.