I just wish Jason's chest would clear. It has been two weeks of physio, nebbing 4 hourly, Acc 200, singulair sprinkles and still we are battling with the nose and chest. Unfortunately Jason isn't coughing enough to bring up the phlegm so this afternoons physio session we had to suction to clear the nose and the back of the throat. Not nice at all holding him down but it had to be done.
Dr. P requested the ENT to come and see Jason and he went through Jason's history with me and has decided that he will need a CT of the sinuses to have a look what is going on there. He will chat to Dr. P about that. Jason has battled with his sinuses for years. He has had his adenoids out, we have done all the nasal sprays and he always has a chronic nasal problem which causes the post nasal drip and aggrevates the nausea and vomiting and diarrhea. The more mucous he has the worst he feels. He is always worst in the morning and feeding is always terrible and sometimes we can't feed him in order to get him to school.
The Prof has ordered a DNA blood test for Cystic Fibrosis so blood was taken today for that. We have done the sweat test years ago which was normal but never done a blood test. From my research the results take 6 - 8 weeks. He has also sent the Graz report onto an associate in Germany to translate and he will then send his findings to a gastroenterologist in America for an opinion. Wonderful man!
I saw the urologist today. He went through the procedure that was done on Friday and advised that Jason will need a circumcision to be done as well as the dilation to be done. I am not sure when this will happen, whether it will be this week or whether we will do it in a few weeks time. I am impatient I would like everything done now so we can leave and be done with everything but that's up to the doctors to decide. Also Jason has been through a lot but we just take everything one day at a time. The catheter was removed as well today which is great.
It's great to have a team of doctors working with us. All putting their heads together and I am seeing progress. I feel like things are coming together slowly but surely.
Jason has been through so much this month, the poor child. He has been prodded and poked for drips and bloods, held down and suctioned for physio, traumatized for x-rays, had surgery, had to have a catheter. He has had it all. It's hard as a parent going through this with your child. As much as they have to go through it all, we are going through the trauma ourselves. BUT we are getting somewhere and that is the main thing! I finally feel like we are getting somewhere.