Shame my little man is always so good when it comes to hospital admissions, he races in that paediatric ward like he owns the place (which we have almost paid off technically). When they did his drip Nancy (the nurse) called him and told him she is ready for him. He raced over to the treatment room, climbed on the chair, climbed on the bed and turned on the treatment light. He just lies there so still while they do his drip site. Unfortuately they didn't get a decent vein to do bloods so they had to poke him a second time which also didn't go smoothly. His blood wasn't flowing, so he was obviously dehydrated. Otherwise the day went smoothly. His chest is clear thank goodness so no need for an antibiotic. We are treating the snotty nose and mucous with sprays and medication to help it clear. This excess mucous obviously causes a post nasal drip and aggrivates the gagging. Feeding is still a mission at the moment. I am managing 400mls during the day which is half his daily requirement but being on Neocate seems to help as he is still gaining weight with half the volume - yeah!! The Neocate his body absorbs whereas all the others just go straight through him.
Today I have an appointment with the "feeding difficulty clinic". I am SO nervous and can't concentrate on anything else. Every time I think of it I get butterflies in my tummy and feel quite tearful and sick. I know it sounds crazy but when you have been through what I have been through with Jason the past 6 years to try and help him eat this tends to do this to you. We have seen the experts with years of experience in this field but due to Jason's medical problems we have been unsuccessful twice. I don't know if they will be able to help but it's another option for us and another hope for us. I am prepared to try everything and will NEVER give up. Jason will eat one day. I know he can do it we just need him to be healthy. If they can't help with weaning him from the tube maybe they can help with his ongoing medical condition and some answers there. I will just continue to pray about it and hand it over to God - he knows whats best for Jason and let's see where this takes us!! I guess it's exciting but at the moment I feel so nervous I feel like vomiting :-)