This week has been a tough one for my little man. The gagging and vomiting has continued and just continued to get worse. On Saturday last week we had quite a lot of vomiting and gagging episodes and Sunday the same thing. Also on Sunday started doing lots of poos as well. Monday morning he woke up late, not his usual time and I just knew it, something was up with him. My poor little man woke up gagging and vomiting. His temp was fine at first but he continued to vomit and moan and lie there clutching his towel nappy as comfort to him. When I checked his temperature later his temp had suddenly risen to 38.8. That was the deciding factor, I knew something was up. He had the temps now, the blotchy red skin, the gagging and the vomiting. I have been thinking that maybe salmonella again because he has had the gagging and vomiting and loose stools for a few weeks now. But when I took him to Dr. P his paed he was examined and it turns out it was his left ear that was giving him problems. His ear was inflamed and had fluid in. Thankfully his chest was clear!
So unfortunately Jason is on antibiotics again and celestamine for his nose. His nose is a chronic problem. He has chronic sinusitus and a lot of the time his nose causes his problems because of the post nasal drip he has. He has to be on medication long term for that as well as a nasal spray. He takes after his mommy with the nose problems unfortunately.
It's strange though. One minute Jason can be absolutely fine and the next minute man down. It is very frustrating for us we never know when he is going to be ok or not. All we hope is that this will pass soon. Unfortunatly we missed speech therapy, occupational therapy and swimming this week. Everything that he loves and everything that is so important to him. Feeding has had to be slowed down and sometimes a feed has had to be missed altogether to make sure that he is ok, can make school and will come right. Luckily we only missed school on Monday and managed the rest of the week.
We did manage some good times this week between the illness. That's what I mean when I say one minute he can be fine and the next minute man down. At school they had their little Christmas party on Thursday which they had at the animal farm. I am so sorry I missed it. Jason in the past has reacted badly to animal farm visits. Sometimes he can be fine and other times he can gag and vomit the whole way through. I think it is a sensory thing to do with the animals and the noise. Anyway I have been told by Jeanette that he absolutely LOVED it. They couldn't believe their eyes. He fed the rabbits carrots by hand, fed the pigs AND he rode a horse!!! I can't believe he got on the horse. I have tried a few times and he normally goes all stiff and there is no ways he will stay there! Well he was on the horse and he had a ball. Jeanette said that she has a picture so hopefully I will get to see that one. When I heard I just burst out crying - so proud of him!!
For me this week has been a downer and quite emotional. I have a lot going on in my mind at the moment. Things have been going so well lately, his eating has been going great, his weight gain has been going great and he has just come on in leaps and bounds so this illness to me was a big blow. Also the fact that we want to attempt our second tube wean over December and that is almost here and now he is sick and on antibiotics. I know, I know, all kids get sick. I know that but when Jason gets sick everything comes to a standstill. We are housebound, cannot get out, the eating stops, the feeding gets reduced and the therapy stops. It's hard, it really is especially because I just want my little man to grow and start eating now. Now is the time!! I have been in touch with Graz and they are happy to help with the tube wean via netcoaching!! I do have a heavy heart about the wean. It's so hard watching your child starving and they don't understand why you won't feed them. All the emotions that go into a wean is hard and now with him being sick I am afraid that he is going to lose weigh and not feel well at a crucial time just before a wean. I just have to keep the faith and trust that God is watching over us and he knows and sees what is going on and whatever HE decides will be!
I don't know after 6 days on antibiotics it has taken forever for him to improve and get better. I know and Dr. P agrees that this is also the autonomic sensory problem that Jason has. The blotchy red skin is a tell tale sign for sure. I don't know whether it's time to review his medication or whether this is just a sickness. That's the hardest part, we just don't know. Too many questions, too few answers. At least a comfort for me is knowing that Jason is having his polygam on Tuesday so he will be thoroughly examined again and bloods and a blood culture will be taken and we will know more after that!
Our little man is such an angel, such an example to Bruce and myself. We watch him feeling so sick but still he gets up and he carries on. He doesn't complain, he doesn't cry, he deals with it. He is such a toughie. There is nothing that Bruce and myself won't do for him. He was the best gift that God could have given us.
A parents love for their children - there is no love like it! You will do absolutely everything or ANYTHING for your children. No matter how young or how old they are. They are always in your hearts -they never leave. No matter how close or how far they are, you are their parents and you will do ANYTHING for them!! I never knew this until I had a child of my own!!
So unfortunately Jason is on antibiotics again and celestamine for his nose. His nose is a chronic problem. He has chronic sinusitus and a lot of the time his nose causes his problems because of the post nasal drip he has. He has to be on medication long term for that as well as a nasal spray. He takes after his mommy with the nose problems unfortunately.
It's strange though. One minute Jason can be absolutely fine and the next minute man down. It is very frustrating for us we never know when he is going to be ok or not. All we hope is that this will pass soon. Unfortunatly we missed speech therapy, occupational therapy and swimming this week. Everything that he loves and everything that is so important to him. Feeding has had to be slowed down and sometimes a feed has had to be missed altogether to make sure that he is ok, can make school and will come right. Luckily we only missed school on Monday and managed the rest of the week.
We did manage some good times this week between the illness. That's what I mean when I say one minute he can be fine and the next minute man down. At school they had their little Christmas party on Thursday which they had at the animal farm. I am so sorry I missed it. Jason in the past has reacted badly to animal farm visits. Sometimes he can be fine and other times he can gag and vomit the whole way through. I think it is a sensory thing to do with the animals and the noise. Anyway I have been told by Jeanette that he absolutely LOVED it. They couldn't believe their eyes. He fed the rabbits carrots by hand, fed the pigs AND he rode a horse!!! I can't believe he got on the horse. I have tried a few times and he normally goes all stiff and there is no ways he will stay there! Well he was on the horse and he had a ball. Jeanette said that she has a picture so hopefully I will get to see that one. When I heard I just burst out crying - so proud of him!!
For me this week has been a downer and quite emotional. I have a lot going on in my mind at the moment. Things have been going so well lately, his eating has been going great, his weight gain has been going great and he has just come on in leaps and bounds so this illness to me was a big blow. Also the fact that we want to attempt our second tube wean over December and that is almost here and now he is sick and on antibiotics. I know, I know, all kids get sick. I know that but when Jason gets sick everything comes to a standstill. We are housebound, cannot get out, the eating stops, the feeding gets reduced and the therapy stops. It's hard, it really is especially because I just want my little man to grow and start eating now. Now is the time!! I have been in touch with Graz and they are happy to help with the tube wean via netcoaching!! I do have a heavy heart about the wean. It's so hard watching your child starving and they don't understand why you won't feed them. All the emotions that go into a wean is hard and now with him being sick I am afraid that he is going to lose weigh and not feel well at a crucial time just before a wean. I just have to keep the faith and trust that God is watching over us and he knows and sees what is going on and whatever HE decides will be!
I don't know after 6 days on antibiotics it has taken forever for him to improve and get better. I know and Dr. P agrees that this is also the autonomic sensory problem that Jason has. The blotchy red skin is a tell tale sign for sure. I don't know whether it's time to review his medication or whether this is just a sickness. That's the hardest part, we just don't know. Too many questions, too few answers. At least a comfort for me is knowing that Jason is having his polygam on Tuesday so he will be thoroughly examined again and bloods and a blood culture will be taken and we will know more after that!
Our little man is such an angel, such an example to Bruce and myself. We watch him feeling so sick but still he gets up and he carries on. He doesn't complain, he doesn't cry, he deals with it. He is such a toughie. There is nothing that Bruce and myself won't do for him. He was the best gift that God could have given us.
A parents love for their children - there is no love like it! You will do absolutely everything or ANYTHING for your children. No matter how young or how old they are. They are always in your hearts -they never leave. No matter how close or how far they are, you are their parents and you will do ANYTHING for them!! I never knew this until I had a child of my own!!