Early this morning was yet another reminder why we HAVE to get Jason to eat as soon as possible. I woke up at 1am and checked on Jason. I usually wake at least 3 times a night to make sure that he is not tangled in the feeding tube. His milk was still going but thank goodness I checked because his mic-key balloon had ruptured and had come totally out his tummy.
I am pretty use to this because this is the 3rd time it has happened in his sleep. As I suspected the hole in his tummy had already started closing. I would say it takes about 2 hours for the hole to completely close. I got the spare mic-key and took a look at his tummy and thank goodness the hole hadn't closed completely.
The only way to get the mic-key back into the tummy once the hole has started closing is to stretch the hole and we have learnt the best way is to use a solid object and we use Jason's thermometer sterilized obviously with K-Y jelly and slowly open and stretch the hole.
Luckily Jason was still half asleep and has such a strong pain threshold that he didn't feel much at all. It took me half an hour and I eventually managed to get the spare in. PHEW stressful moments.
We will be able to get a replacement mic-key tube next week because of the 30 day guarantee but we have been told that this will be the last because of Jason's history of tubes rupturing at least every month. This one lasted 12 days! No-one knows why the tubes don't last with Jason and we have been told that he is the only child that goes through tubes like this. The only other option is to change his tube to a bard button which is a more permanent tube and won't come out as easily.
We have a few reasons why we don't want to change tubes. This bard button is a more permanent tube, is silicon with a mushroom-like solid end in the tummy and has to be inserted in theatre. With Jason's high pain threshold we are worried that the tube may come out anyway because he won't feel pain when it is pulled on and we do not want to take the risks of having to go to theatre with his history of oxygen dropping in theatre.
The sooner Jason can eat, the better!!
I am pretty use to this because this is the 3rd time it has happened in his sleep. As I suspected the hole in his tummy had already started closing. I would say it takes about 2 hours for the hole to completely close. I got the spare mic-key and took a look at his tummy and thank goodness the hole hadn't closed completely.
The only way to get the mic-key back into the tummy once the hole has started closing is to stretch the hole and we have learnt the best way is to use a solid object and we use Jason's thermometer sterilized obviously with K-Y jelly and slowly open and stretch the hole.
Luckily Jason was still half asleep and has such a strong pain threshold that he didn't feel much at all. It took me half an hour and I eventually managed to get the spare in. PHEW stressful moments.
We will be able to get a replacement mic-key tube next week because of the 30 day guarantee but we have been told that this will be the last because of Jason's history of tubes rupturing at least every month. This one lasted 12 days! No-one knows why the tubes don't last with Jason and we have been told that he is the only child that goes through tubes like this. The only other option is to change his tube to a bard button which is a more permanent tube and won't come out as easily.
We have a few reasons why we don't want to change tubes. This bard button is a more permanent tube, is silicon with a mushroom-like solid end in the tummy and has to be inserted in theatre. With Jason's high pain threshold we are worried that the tube may come out anyway because he won't feel pain when it is pulled on and we do not want to take the risks of having to go to theatre with his history of oxygen dropping in theatre.
The sooner Jason can eat, the better!!