Had a good rest last night, the nurses felt sorry for me fighting with my blow up bed having to pump it up 3 times the night before that they sneaked a bed in for me!
The new formula is going well. Jason hasn't gagged for a few days now and still fine on the new formula. His pooing has decreased and changed to brown - the fist time ever. Still runny though so hoping that will improve with time. At least the numbers have decreased.
The neuro phoned our paed to say that there is epilim evident in Jason's blood and his l-carnitine levels are low. He wants us to start Jason on 2,5mls of l-carnitine. Not too sure what it means and how it will affect Jason but will know more once we have seen the neuro.
Well the paed is happy for us to go home so yippee we can go home!!
The new formula is going well. Jason hasn't gagged for a few days now and still fine on the new formula. His pooing has decreased and changed to brown - the fist time ever. Still runny though so hoping that will improve with time. At least the numbers have decreased.
The neuro phoned our paed to say that there is epilim evident in Jason's blood and his l-carnitine levels are low. He wants us to start Jason on 2,5mls of l-carnitine. Not too sure what it means and how it will affect Jason but will know more once we have seen the neuro.
Well the paed is happy for us to go home so yippee we can go home!!
