Had a good night, no vomiting or gagging but still too much diarrhoea. We managed all 800mls milk - yippee and we both slept really well.
The paed said she isn't happy with the look Jason's poo nappies and said that Jason is malabsorbing, so they will test again for reducing substances. She suggested that we make a decision to try change formula and see if there is any improvement.
I saw the dietician today and she suggested Nutrini Pepticate which is a semi-elemental formula specific for malabsorption. She said we should stop feeds today, give Jason's gut some time to rest again and start with the new formula which should arrive in the morning. I guess we have no option but to try. We have tried so many formulas on the market and this is one we haven't tried. Wasn't chuffed that we have to stop feeds again but what can we do?
My brain isn't working too well, I am pretty tired, it has been a tough day. I was hoping that we may go home today or tomorrow but it isn't looking like that. Tomorrow should be the last dose of antibiotic unless the Paed wants to do a 7 day course. It isn't easy keeping Jason happy in this little room but at least we are lucky, we are in the biggest isolation room all on our own so I shouldn't complain. Jason is just use to his space. He is a good little boy though.
In the morning we will be taking MORE blood to test if the potassium levels have gone up.
Jason has started with a clogged, blocked nose now so that doesn't make me happy at all. More medicine to add to the pharmacy we already have at home - 3 nasal sprays to add.
I am really hoping that after Austria most of this will be behind us. I know we have a long road ahead of us, but surely it can't be harder than this??
Well time to retire to my blow up bed. We should have a good sleep, Jtjie was awake all day.
The paed said she isn't happy with the look Jason's poo nappies and said that Jason is malabsorbing, so they will test again for reducing substances. She suggested that we make a decision to try change formula and see if there is any improvement.
I saw the dietician today and she suggested Nutrini Pepticate which is a semi-elemental formula specific for malabsorption. She said we should stop feeds today, give Jason's gut some time to rest again and start with the new formula which should arrive in the morning. I guess we have no option but to try. We have tried so many formulas on the market and this is one we haven't tried. Wasn't chuffed that we have to stop feeds again but what can we do?
My brain isn't working too well, I am pretty tired, it has been a tough day. I was hoping that we may go home today or tomorrow but it isn't looking like that. Tomorrow should be the last dose of antibiotic unless the Paed wants to do a 7 day course. It isn't easy keeping Jason happy in this little room but at least we are lucky, we are in the biggest isolation room all on our own so I shouldn't complain. Jason is just use to his space. He is a good little boy though.
In the morning we will be taking MORE blood to test if the potassium levels have gone up.
Jason has started with a clogged, blocked nose now so that doesn't make me happy at all. More medicine to add to the pharmacy we already have at home - 3 nasal sprays to add.
I am really hoping that after Austria most of this will be behind us. I know we have a long road ahead of us, but surely it can't be harder than this??
Well time to retire to my blow up bed. We should have a good sleep, Jtjie was awake all day.