I try to make this an annual fundraising event where I sign up as a Rare Activist and raise funds for Rare Diseases South Africa. I like to make this day all about awareness and the community uniting in educating and embracing our rare warriors. It's so important to create that awareness and if I can do that for one day I'm a happy rare mommy.
School drop off and work arrival was so special and emotional seeing all the little one's, teachers, companies and friends embracing this day with us ❤.
To our family and friends thanks for always being there for us.