Jason is feeling better. The gagging and vomiting is still there but I believe it will be there until this dam tube is removed. Yes the same dam tube that has kept him alive all this time but seriously this tube also has caused us endless problems. I am grateful for having it and grateful for technology that a tube in my son’s tummy can feed him, keep him nourished and alive. But now we need to get rid of it!
So what’s the plan for tomorrow? Well Jason’s milk will stop tomorrow morning at 4am via the pump. The plan for the first 3 days is not to feed him via the tube before 2/3pm. Using the same principals as we did in Graz we will encourage him to eat and drink throughout the day. Have food and drinks around him all the time and we see how he goes. We will be in contact with Graz advising us what to do. I have already been in contact with the professor and they are standing by us waiting on the other end of the world to see how Jason does.
Please everyone keep Jason and us in your prayers. We really need Jason to get that will and hunger to eat and we need this tube wean to go as smoothly as possible.
Word of warning, the internet is VERY slow here so if you don’t hear from me for a day or two,it’s not my fault, it’s the internet connection. So you may find one day you don’t hear from me but the next day or two you have two or three updates to read.
I know you all are going to follow and support us and I really appreciate the support that we get. So seriously PLEASE leave comments. Your comments really do help keep me sane and motivated. I need to know that besides you all reading the blog. I need to know that you are there and with us encouraging us.