We battled with a really snotty nose, lots of mucous, lots of gagging and vomiting. Last Tuesday we had polygam in hospital for the day so were able to see Jason's Paed to examine him and figure out what is going on with him. Perfect timing when Dr. P came to see us Jason was so clogged up and even slipped on some of Jason's spit on the floor - oops!! Jason was basically vomiting this thick mucous which was obviously coming from the nose, dripping down his throat and Jason doesn't swallow at the best of times so that thick mucous was causing him to gag and vomit. Anyway we had to do another course of antibiotics, some nose drops and some medicine for his chest - it was starting to spread to the chest causing him to wheeze and cough!
Well he is finally on the mend and I am happy to say our happy, giggly little man is back. We are back to playing in the garden, playing with the dogs, running under the hose pipe, going to the beach etc. And the appetite is slowly coming back too. The other night when I was cooking he stole some onion. Yes onion of all things. The first piece he chewed and swallowed. The second piece he choked on but he seemed to like onion. Crazy little monkey!
A few more days to go and we are off down the coast to visit granny and grandpa for the Christmas break. I have registered with "No Tube" to do the net coaching tube wean and I think we will begin properly on the 19th! I have been in contact with the professor from Austria and it's all systems go!! I am very nervous about the wean. We have been through this before in Austria so it's not like we don't know what we are doing but I don't know what to expect and how Jason is going to react? Anyway I would love to just go on holiday and forget all about trying to get Jason to eat but NOW is the time. Jason MUST start eating and I really believe it in my heart he is ready!! I know he can do this and I have a huge support network to keep us going and motivated.
I know it must be hard for most of you to understand how a 4 year old won't eat. It seems so simple, stop feeding him and he will eat. I know it's crazy but it isn't that simple. The only people that will actually understand is those that have been through it themselves and those that have or have had children with feeding tubes that don't eat. Anyway most of you have walked this journey with us and most of you have watched the difficulties and the progress that we have had with Jason. All I ask from ALL of you is to continue this journey with us every step of the way. I am going to need all you support and all your prayers. Pray every night for Jason, pray for strength, understanding, encouragement and the WILL to eat. Something that is so natural for us is so unnatural for Jason. It's going to be a long process for him to trust food, learn to swallow and get that taste and hunger for food. He is a tough cookie but I believe he will do this!!
I just really hope and pray that once Jason is eating normal food he will be a lot healthier, I can throw away all his medicine, keep him medicine free, no more night pump feeds where I am up at least 4 times a night. No more vomiting and gagging. No more infections from tubes. No more chronic diarrhea and nappies. Hopefully we can get this toilet training off the ground and have a happy, healthy, eating, talking, potty trained little man soon!!